Jay Reinstein

About Jay Reinstein

My Alzheimer’s story began two years ago. After 25 years in local government, most recently serving as the assistant city manager in Fayetteville, NC, I began to experience issues with information recall and my short-term memory, which caused a great deal of anxiety in both my work and personal life.

At age 57, I was diagnosed with younger-onset Alzheimer’s, three words that would change my future and impact my life forever. Following a very brief pity party, I recognized that by going public with my diagnosis, I could help educate folks, raise awareness and reduce the stigma associated with this disease. I began to get involved with the Alzheimer’s Association Eastern North Carolina Chapter, which opened the door to many new opportunities, from speaking engagements to events at my local Walk to End Alzheimer’s.

Most recently, I was appointed to the Alzheimer’s Association National Board of Directors in Chicago along with serving on the National Early Stage Advisory Group – both great opportunities to raise awareness and educate the community about this very devastating disease.

Why This Webpage?

There are approximately 300,000, or 5%, of the 6 million Americans living with Alzheimer’s diagnosed with Younger-Onset Alzheimer’s disease. These individuals, in their 40’s and 50’s, are often the forgotten ones. There are many myths, misconceptions and stereotypes about Alzheimer’s disease. Because of our young age, people may not believe you have the disease, may question your diagnosis or dismiss it. Stigma can have a significant impact on your well-being and quality of life. It may cause you to withdraw from your relationships and become isolated. Don’t fear stigma, fight it instead.

Mission

To inspire and encourage individuals living with younger-onset Alzheimer’s to stay positive, share their stories and live life to its fullest!

Vision

Our mission is to provide a community that enables individuals diagnosed with Younger-Onset Alzheimer’s, a safe place to share their journey through blogging and vlogging, and giving those living with the disease hope for a cure.